Invitation to organizations in Canada
June 12, 2020
WHAT IS THE GLOBAL REPORT ON DEVELOPMENTAL DELAYS, DISORDERS AND DISABILITIES?
A number of international policy and advocacy organizations, including the World Health Organization, UNICEF, and Autism Speaks are putting together a Global Report on Developmental Delays, Disorders and Disabilities. The Global Report will be used to increase awareness and provide guidance on strengthening health systems and multisectoral actions for children and youth with developmental delays, disorders and disabilities and their families. The Global Report has acquired new significance as affected individuals and families confront new challenges and barriers resulting from the COVID-19 pandemic.
CASDA is a partner in the Canadian part of this report and development of this survey. Reports from this dataset will be generated and used to inform Canadian policy and the National Autism Strategy.
THE GLOBAL REPORT SURVEY
A 30-minute online survey (available in English and French) is being used to capture the experience of caregivers of a child (at any age) with any developmental delays, disorder or disability in Canada. The survey explores their lived experience in caring for children with developmental delays, disorders, and disabilities. Topics include response to the pandemic, access to care, mental health impact, and coping. Participants will be offered a $15 gift for completing the survey.
Survey Webpage: https://earlyautism.ca/
HOW CAN YOUR ORGANIZATION CONTRIBUTE?
Drs. Mayada Elsabbagh and Keiko Shikako-Thomas (McGill University) are the focal point researchers facilitating data collection in Canada. They are inviting all interested organizations to disseminate the Global Report Survey in their communities across Canada. Please contact us if you would like your organization’s logo to appear on the survey homepage. Participating organizations will receive periodic updates about the results and how they are being used to inform policy locally and internationally.
HOW DO I INVITE CAREGIVERS?
We invite organizations to disseminate the survey through their preferred channels, e.g., website, social media, mailing list.
Text invite:
“The COVID-19 pandemic is hard for everyone but coping with the pandemic can be even harder for people with disabilities and their families. We are inviting Canadian families to contribute to the World Health Organization/UNICEF Global Report on Developmental Delays, Disorders, and Disabilities. Your response to a brief survey will help to identify service needs and inform policies related to the pandemic. Before you start, please read the Informed Consent to see if you agree to answer the questions.
https://earlyautism.ca/
After completing the survey, we will send you a gift of $15 as a thank you for your participation. For more information, please contact Miriam Gonzalez.
Thank you!”
For additional information, please contact Dr. Miriam Gonzalez at <miriam.gonzalez@mail.mcgill.ca>.