In October 2021, the Autism Alliance of Canada launched the Autism Data Collaborative (ADC) with the support of The Azrieli Foundation. The ADC’s inaugural event brought together stakeholders across the country to discuss how to better leverage Canadian data assets to inform autism policy in Canada. To read more about our Fall 2021 ADC Stakeholder Dialogue Session click here.

After the event, we got to work distilling the dialogue into tangible next steps for the data collaborative. To read more about this process in our ADC Stakeholder Report click here. Four priority areas emerged from our thematic analysis of the dialogue session:

  1. Exploring the development of a national clinical registry
  2. Developing capacity for common measurements across community organizations
  3. Advancing the use of administrative data
  4. Implementation of standardized clinical outcomes

Since February 2022, four workings groups have begun meeting to make progress on these priority areas. The working groups are made up of 42 people from across Canada who are Autistic self-advocates, caregivers, service providers, policy makers, community organizations, and researchers.

Our Collective Goals

Through knowledge sharing, dialogue, and collective expertise, the ADC aims to facilitate and accelerate multidisciplinary, multi-sector, and multi-jurisdictional data initiatives and health services and policy research for autism.

The following values, synthesized directly from dialogue at the inaugural event, will guide the actions of this collaborative.

Interested in Getting Involved?

Click below to join a working group and/or sign up for our mailing list to hear about upcoming events, working group progress, and knowledge synthesis products of the collaborative.